Right around this time last year started the most difficult series of trials I've faced in my life. Every time one insurmountable challenge seemed to finally be resolvable, a new and improbable catastrophe arose.
After Penny was born, I wanted to believe everyone who told me how motherhood would be, that there would be routine hardships but that all would pass. As the weeks and months passed, it became clear that in this situation, too, things were not normal--the delivery, my recovery, and most importantly, Penny's health. This was all overlaid on our family's pending international move.
This past week, as we hopefully finished a month-long series of doctor's visits and tests for one of Penny's medical issues while Peter was abroad, she became violently ill. Somehow I still believed that she was normal, that this was a routine illness like all babies get. She had turned 6 months the day before, and I figured her immune system was robust enough to handle whatever it was. Instead, she got worse, had to be rushed to the hospital, invasive testing was performed, and we got a new and again improbable diagnosis. Because she is an infant, she will have further invasive testing done, and there is a significant chance of permanent damage from not only the illness, but also the testing, and the treatment. She will have to be rushed to the emergency department every time she has a fever, and furthermore, there is no consensus among doctors regarding how to deal with the condition, which is the subject of much heated academic and clinical discussion and is extremely complicated. There is no cure, only damage control.
I am exhausted and profoundly sad. Sorry to everyone for being so out of touch.
